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Batten disease is a rare, fatal autosomal recessive neurodegenerative disorder that begins in childhood. It is the most common form of a group of disorders called neuronal ceroid lipofuscinosis (or NCLs). At least nine genes have been identified in association with Batten disease, but juvenile NCL, the most prevalent form of Batten disease, has been linked to mutations in the CLN3 gene.

  • [News Stem cell research saves Kentucky Girl with Batten Disease    

     


  • [News StemCells, Inc. announces positive phase I Batten trial results    
    StemCells, Inc. (NASDAQ: STEM) announced today positive results from the first Phase I clinical trial of its proprietary HuCNS

  • [News The Box of Love for Batten Disease Patients    
    The Box of Love for Batten Disease Patients

  • [BATTEN DISEASE Hailey Brianne Goranflo-- Batten Disease (USA) Posted on April 20, 2009    

  • [BATTEN DISEASE Evangelina Sharashkina--Batten disease( Russia ) Posted on May 25, 2009    

  • [BATTEN DISEASE Alexia Tamara Godo - Batten disease(Argentina) Posted on September 11, 2009    

  • [BATTEN DISEASE Maresu Luis Eduardo-Batten disease(Argentina) Posted on 2 February,2010    

  • [Q&A For Batten disease treatment, what type of stem cells being used?    

    For the treatment of Batten disease, our doctors prefer to use neural stem cells, and in the treatment procedure, there are 4 separate stem cell injections (once per week) with 5 million stem cells in e


  • [Q&A What medications do you use on Batten disease patients?    

    What class/type of anticonvulsants or anti-seizure medications do you use on Batten disease patients?

    To treat Batten disease patients th


  • [Doctor Blogs Hailey's seizures decrease significantly - 02/13/2009    

  • [Doctor Blogs Hailey's pneumonia is gone - 03/13/2009    

  • [Doctor Blogs Look! The smiling little beauty! - 04/30/2009    
    April 2nd, I took over the case of a little five and a half-year-old girl from Russia, her symptoms started two years ago, and was diagnosed with NCL2 (Batten's disease) in 2008.

  • [Patient's Video Batten's disease-Blake Dell'Aringa-after-PTOT    

  • [Patient's Video Batten's disease-Blake Dell'Aringa-before1    

  • [Patient's Video Batten's disease-Blake Dell'Aringa-before2    

  • [Patient's Video Batten's disease-Blake Dell'Aringa-before-PTOT    

  • [Case Analysis Stem Cell Therapy for Batten's Disease (April 30, 2009)    Drs. Xi, Wang and Wu

  • [Research & Advances Cornell gene therapy yields promising results for Batten disease    

  • [Batten Disease Stem Cell Treatment for Batten Disease    

  • [Treatment we offer Batten disease    

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    Some Facts About Our Unique Stem Cell Therapy

  •  What types of rehabilitation training is done?
  •  Is other therapy done in addition to stem cell infusion?
  •  Is general anesthesia used?
  •  When I send my records to your hospital, does a doctor read?
  •  Is it possible for you to manufacture the TPP1 enzyme and deliver it?
  •  What medications do you use on Batten disease patients?
  •  If your hospitals have an age restriction on patients?
  •  About the neural growth factors that your medical center use
  •  For Batten disease treatment, what type of stem cells being used?
  •  How long after surgery will it be before I can bathe or shower?
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