There is a white plastic box at Wu Stem Cells Medical Center, and inscribed on the lid are the words: "To The Batten Disease Families." The box was initially left here by a family who has a child with Batten disease. Inside the box are various items that can be useful for other families who come here to have their loved ones treated for their Batten disease. The box is passed onto other families whose loved ones suffer from the disease. It is a way to send love and support to other families dealing with this terrible disease.
NCL (neuronal ceroid lipofuscinosis) is a kind of inherited neural degenerative disease affecting mainly children and only occasionally seen in adults. It is an autosomal recessive inheritance neural system disorder. In 1826, Dr. Stengel first discovered the disease and developed the concept of CL (ceroid lipofuscinosis). Dr. Zeman and his partners discovered fluorescence of brain sediments in patients with amaurotic family Idiocy in 1963, and then six years later, they named the disease NCL (neuronal ceroid lipofuscinosis). The main symptoms of NCL are vision loss, progressive dementia, refractory epilepsy and degeneration of the person's motor ability. At present, there is no cure for this disease.However, both Dr. Wu and Dr. Wang have been using stem cells to treat Batten disease with good results. The stem cell treatment can slow down the progression of the disease, prolonging the patient's life, and our doctors are still continuing their research in an attempt to discover a cure. Many families with loved ones suffering from Batten disease have come here for the stem cell treatment. When they return home, some have communicated to other Batten disease families about the positive results of our treatment in slowing down the progression of this disease.
